OncoAdvocacy™
Patient advocacy resources
Connect with the patient advocacy landscape — organizations, programs, and the patient voice that shapes Oncology.
Advocacy organizations
99 listed
- AACR Foundation (American Association for Cancer Research) (opens in a new tab)
Science-driven organization funding cancer research and translating discoveries into prevention and treatment
Pan-Cancer / Multi-Disease
- AIM at Melanoma Foundation (opens in a new tab)
International melanoma advocacy organization advancing legislation education and global patient support
Melanoma
- Alex's Lemonade Stand Foundation for Childhood Cancer (ALSF) (opens in a new tab)
Funds pediatric cancer research and raises awareness while supporting families affected by childhood cancer
Pediatric Cancer
- AliveAndKickn (opens in a new tab)
Patient organization dedicated to Lynch syndrome and other hereditary cancer syndromes; advocates for genetic testing access and supports affected families.
Hereditary Colon Cancer (Lynch syndrome)
- Alliance for Childhood Cancer (opens in a new tab)
Coalition of 25+ childhood cancer advocacy and medical organizations representing a unified patient voice
Pediatric Cancer
- American Brain Tumor Association (ABTA) (opens in a new tab)
Major US brain tumor patient organization complementing NBTS; funds research, supports patients, and advocates for brain tumor patients of all types.
Brain Tumor / CNS Cancer
- American Cancer Society (ACS) (opens in a new tab)
Largest voluntary health org fighting cancer across all types through research education prevention and patient services
Pan-Cancer / Multi-Disease
- American Cancer Society Cancer Action Network (ACS CAN) (opens in a new tab)
Nonpartisan advocacy arm of ACS focused on influencing public policy and legislation at federal and state levels
Pan-Cancer / Multi-Disease
- American Melanoma Foundation (AMF) (opens in a new tab)
Provides patient support education and research funding with focus on UV protection and early detection
Melanoma
- American Society of Clinical Oncology (ASCO) (opens in a new tab)
Leading professional organization for oncologists advancing education research guidelines and policy in clinical Oncology
Pan-Cancer / Multi-Disease
- Anal Cancer Foundation (opens in a new tab)
Sole organization dedicated to anal cancer patient advocacy, awareness of HPV-related anal cancer, and prevention through HPV vaccination and anal cancer screening.
Anal Cancer
- Aplastic Anemia & MDS International Foundation (AAMDSIF) (opens in a new tab)
Dedicated to bone marrow failure diseases including MDS aplastic anemia and related rare blood disorders
Bone Marrow Failure (Aplastic Anemia, MDS, PNH, AML)
- Association of Community Cancer Centers (ACCC) (opens in a new tab)
Education and advocacy organization for multidisciplinary Oncology team members serving community cancer programs
Pan-Cancer / Multi-Disease
- Be The Match (National Marrow Donor Program) (opens in a new tab)
Operates the world's largest stem cell registry connecting patients with bone marrow/cord blood donors; supports patients, families, and transplant centers globally.
Hematologic Malignancies (BMT/Cell Therapy)
- Bladder Cancer Advocacy Network (BCAN) (opens in a new tab)
Community of patients caregivers and professionals advancing bladder cancer research and support
Bladder Cancer
- Blood Cancer United (formerly LLS — note overlap) (opens in a new tab)
Successor branding for hematologic malignancy patient services; LLS rebranded portions of programming under Blood Cancer United banner. Note: overlaps significantly with LLS entry.
Hematologic Malignancies
- Blue Faery: The Adrienne Wilson Liver Cancer Association (opens in a new tab)
Patient organization dedicated to primary liver cancer (hepatocellular carcinoma) awareness, prevention, and treatment; founded after a patient's death from HCC.
Liver Cancer (HCC)
- Breast Cancer Research Foundation (BCRF) (opens in a new tab)
Largest private funder of breast cancer research focused on prevention treatment and metastatic disease
Breast Cancer
- Cancer Support Community (CSC) (opens in a new tab)
Largest professionally led nonprofit providing mental health and social support services to people affected by cancer
Pan-Cancer / Multi-Disease
- CancerCare (opens in a new tab)
Provides free professional support services including counseling financial assistance and education to cancer patients
Pan-Cancer / Multi-Disease
- Carcinoid Cancer Foundation (opens in a new tab)
Patient organization for carcinoid syndrome and neuroendocrine tumor (NET) patients; longest-running NET patient advocacy organization.
Neuroendocrine Tumors (NETs)
- Cervivor (opens in a new tab)
Cervical cancer patient advocacy organization focused on amplifying survivor voices and reducing health disparities
Cervical Cancer
- Children's Oncology Group Foundation (opens in a new tab)
Patient/family advocacy and research foundation supporting the Children's Oncology Group, the world's largest organization devoted exclusively to pediatric cancer research.
Pediatric Cancer
- Children's Tumor Foundation (opens in a new tab)
Patient organization for neurofibromatosis (NF1, NF2, schwannomatosis), which predisposes to multiple cancer types including MPNST, optic glioma, and meningioma.
Neurofibromatosis (NF1/NF2/Schwannomatosis)
- Cholangiocarcinoma Foundation (opens in a new tab)
Dedicated to cholangiocarcinoma (bile duct cancer) awareness research and patient support
Cholangiocarcinoma
- CLL Society (opens in a new tab)
Patient-centric organization dedicated to chronic lymphocytic leukemia community providing education and support
Chronic Lymphocytic Leukemia
- Coalition Against Childhood Cancer (CAC2) (opens in a new tab)
Coalition of 200+ pediatric cancer foundations and patient organizations working collaboratively on advocacy, research, and family support across childhood cancer types.
Pediatric Cancer
- Colon Cancer Coalition (opens in a new tab)
National coalition increasing colorectal cancer screening and education particularly in underserved communities
Colorectal Cancer
- Colorectal Cancer Alliance (opens in a new tab)
Largest colorectal cancer patient advocacy org focused on prevention screening and patient support
Colorectal Cancer
- Conquer Cancer Foundation (ASCO Foundation) (opens in a new tab)
Funds cancer research through grants fellowships and awards to advance clinical Oncology globally
Pan-Cancer / Multi-Disease
- CURE Childhood Cancer (opens in a new tab)
Dedicated to curing pediatric cancer through funding research and supporting families in the Southeast and beyond
Pediatric Cancer
- Cure Uveal Melanoma (CURE OM) (opens in a new tab)
Initiative within the Melanoma Research Foundation specifically dedicated to uveal melanoma (eye melanoma) and metastatic uveal melanoma; major catalyst for tebentafusp and other UM research.
Uveal Melanoma
- CureSearch for Children's Cancer (opens in a new tab)
Accelerates pediatric cancer research through funding and clinical trial support for rare and aggressive childhood cancers
Pediatric Cancer
- Cutaneous Lymphoma Foundation (opens in a new tab)
Patient advocacy organization dedicated to mycosis fungoides, Sezary syndrome, and other cutaneous T-cell and B-cell lymphomas; supports patients, caregivers, and clinicians worldwide.
Cutaneous Lymphoma (CTCL/CBCL)
- Debbie's Dream Foundation: Curing Stomach Cancer (opens in a new tab)
Raising awareness about gastric cancer and funding research to improve survival rates
Gastric / Stomach Cancer
- Esophageal Cancer Action Network (ECAN) (opens in a new tab)
Patient advocacy organization dedicated to esophageal cancer and Barrett's Esophagus awareness and research
Esophageal Cancer
- Eye Cancer Foundation (opens in a new tab)
Patient organization for ocular and conjunctival cancers including uveal melanoma, retinoblastoma, and orbital tumors; international scope with research support.
Ocular / Uveal Melanoma
- Facing Our Risk of Cancer Empowered (FORCE) (opens in a new tab)
Supports individuals and families affected by hereditary cancers including BRCA and other gene mutations
Hereditary Breast / Ovarian Cancer
- Fight Colorectal Cancer (Fight CRC) (opens in a new tab)
Grassroots advocacy and policy organization for colorectal cancer focused on research funding and access issues
Colorectal Cancer
- Foundation for Women's Cancer (FWC) (opens in a new tab)
Promotes research education and prevention of gynecologic cancers including ovarian cervical uterine and vulvar
Gynecologic Cancers / Multi-GYN
- GI Cancers Alliance (opens in a new tab)
Global coalition uniting patient advocacy groups focused on all gastrointestinal cancers
GI Cancers / Multi-GI
- GIST Support International (opens in a new tab)
Provides information education and support to patients and caregivers affected by GIST (gastrointestinal stromal tumor)
GIST / Sarcoma
- Glioblastoma Foundation (opens in a new tab)
Sole patient organization dedicated specifically to glioblastoma multiforme (GBM); funds research and supports patients with this aggressive brain cancer.
Glioblastoma (GBM)
- Global Liver Institute (opens in a new tab)
Patient advocacy organization for liver cancer (HCC, cholangiocarcinoma, fibrolamellar) and other liver diseases; advocates for liver health policy and HCC awareness.
Liver Cancer (HCC)
- GO2 Foundation for Lung Cancer (opens in a new tab)
Formed by 2019 merger of Lung Cancer Alliance and Bonnie J. Addario Lung Cancer Foundation; serves all lung cancer patients with screening, navigation, support, and policy advocacy.
Lung Cancer
- Hairy Cell Leukemia Foundation (opens in a new tab)
Sole patient organization dedicated to hairy cell leukemia; funds research consortium and supports patients globally with this rare B-cell leukemia.
Hairy Cell Leukemia
- Head and Neck Cancer Alliance (HNCA) (opens in a new tab)
Promotes awareness early detection and research for head and neck cancers including oral thyroid and laryngeal
Head and Neck Cancer
- HEAL: Healing Esophageal Cancer Awareness League (opens in a new tab)
Esophageal cancer patient organization complementing ECAN; focused on patient and caregiver support for esophageal adenocarcinoma and squamous cell carcinoma.
Esophageal Cancer
- HealthTree Foundation (opens in a new tab)
Patient-powered platform for blood cancer (myeloma, AML, CLL, MDS, MPN, lymphoma) using crowdsourced data and HealthTree Cure Hub for direct patient-research connection.
Hematologic Malignancies
- Hereditary Colon Cancer Foundation (opens in a new tab)
Patient organization for hereditary colorectal cancer syndromes including Lynch syndrome and FAP; provides genetic testing advocacy and family support.
Hereditary Colon Cancer (Lynch/FAP)
- IMPACT Melanoma (opens in a new tab)
Leading nonprofit focused on preventing melanoma through education outreach and early detection programs
Melanoma / Skin Cancer
- International Kidney Cancer Coalition (IKCC) (opens in a new tab)
Global federation of national kidney cancer patient organizations spanning 40+ countries; coordinates international kidney cancer advocacy and patient voice.
Kidney Cancer
- International Myeloma Foundation (IMF) (opens in a new tab)
First and largest myeloma-specific organization providing research funding patient education and global advocacy
Multiple Myeloma
- KCure (Kidney Cancer Research Alliance) (opens in a new tab)
Funds transformative research and advocates for improved kidney cancer treatment access and outcomes
Kidney Cancer
- Kidney Cancer Association (KCA) (opens in a new tab)
Provides education support research funding and advocacy for kidney cancer patients and caregivers
Kidney Cancer
- Leukemia & Lymphoma Society (LLS) (opens in a new tab)
World's largest voluntary health organization dedicated to funding blood cancer research education and patient services
Hematologic Malignancies
- LIVESTRONG Foundation (opens in a new tab)
Provides navigation services and survivorship resources for people affected by cancer with focus on access and equity
Pan-Cancer / Multi-Disease
- Living Beyond Breast Cancer (LBBC) (opens in a new tab)
Empowers people with breast cancer through education and support with focus on underserved communities
Breast Cancer
- Living LFS (Li-Fraumeni Syndrome Association) (opens in a new tab)
Patient organization for Li-Fraumeni syndrome, a hereditary p53 mutation predisposing to sarcomas, breast cancer, brain tumors, and adrenal cortical cancers.
Li-Fraumeni Syndrome (Hereditary Cancer)
- Lung Cancer Foundation of America (LCFA) (opens in a new tab)
Drives research in underrepresented lung cancers including small cell and supports biomarker testing access
Lung Cancer
- Lung Cancer Research Foundation (LCRF) (opens in a new tab)
Funds innovative lung cancer research with emphasis on early-stage detection and translational science
Lung Cancer
- LUNGevity Foundation (opens in a new tab)
Largest lung cancer-focused nonprofit funding research and providing patient support and early detection resources
Lung Cancer
- Lymphoma Coalition (opens in a new tab)
Global patient advocacy network representing over 70 lymphoma patient organizations worldwide
Lymphoma
- Lymphoma Research Foundation (LRF) (opens in a new tab)
Provides education support and funds research to improve outcomes for lymphoma patients
Lymphoma
- Melanoma Research Alliance (MRA) (opens in a new tab)
Largest private funder of melanoma research driving science toward cures and better patient outcomes
Melanoma
- Melanoma Research Foundation (MRF) (opens in a new tab)
Leading US melanoma advocacy organization funding research and providing education to patients and physicians
Melanoma
- Mesothelioma Applied Research Foundation (MARF) (opens in a new tab)
Only nonprofit organization dedicated solely to mesothelioma research and patient support
Mesothelioma
- Metastatic Breast Cancer Alliance (MBCA) (opens in a new tab)
Coalition of organizations focused specifically on improving lives of people with metastatic breast cancer
Breast Cancer
- MPN Advocacy & Education International (opens in a new tab)
Provides resources, education programs, advocacy support and services to patients with myelofibrosis, essential thrombocythemia, and polycythemia vera, plus caregivers and physicians.
Myeloproliferative Neoplasms (MPN)
- MPN Research Foundation (opens in a new tab)
Patient-founded nonprofit funding research and supporting patients with myeloproliferative neoplasms (MF, ET, PV); merged with the Leukemia & Lymphoma Society's MPN portfolio.
Myeloproliferative Neoplasms (MPN)
- Multiple Myeloma Research Foundation (MMRF) (opens in a new tab)
Drives the development of novel myeloma therapies through a model combining research collaborative and patient engagement
Multiple Myeloma
- National Brain Tumor Society (NBTS) (opens in a new tab)
Drives transformative research and advocates for improved brain tumor treatment access and quality of life
Brain Tumor / CNS Cancer
- National Breast Cancer Coalition (NBCC) (opens in a new tab)
Science-based policy advocacy organization training patient advocates and lobbying for increased research funding
Breast Cancer
- National Breast Cancer Foundation (NBCF) (opens in a new tab)
Provides early detection support resources and community to breast cancer patients and survivors
Breast Cancer
- National Children's Cancer Society (NCCS) (opens in a new tab)
Provides financial support and quality of life programs to children with cancer and their families
Pediatric Cancer
- National Coalition for Cancer Survivorship (NCCS) (opens in a new tab)
Pioneer survivorship advocacy org fighting for quality cancer care access insurance protections and survivorship policies
Pan-Cancer / Multi-Disease
- National Organization for Rare Disorders (NORD) (opens in a new tab)
Leading patient advocacy organization for rare disease community including many rare cancers
All Rare Diseases (including Rare Cancers)
- National Ovarian Cancer Coalition (NOCC) (opens in a new tab)
Dedicated to ovarian cancer awareness education and patient support with chapters across the USA
Ovarian Cancer
- NET Research Foundation (opens in a new tab)
Leading patient organization for neuroendocrine tumors (NETs) including carcinoid; funds research and supports patients with this rare cancer family.
Neuroendocrine Tumors (NETs)
- Ovarian Cancer Australia (opens in a new tab)
Largest ovarian cancer advocacy organization in Australia providing support and funding research
Ovarian Cancer
- Ovarian Cancer Research Alliance (OCRA) (opens in a new tab)
Largest global nonprofit dedicated to ovarian cancer research and patient support
Ovarian Cancer
- Pancreatic Cancer Action Network (PanCAN) (opens in a new tab)
Leading organization dedicated to accelerating progress against pancreatic cancer via research early detection and advocacy
Pancreatic Cancer
- Pancreatic Cancer UK (opens in a new tab)
UK's leading pancreatic cancer charity providing patient support and funding critical research
Pancreatic Cancer
- Patient Advocate Foundation (PAF) (opens in a new tab)
Provides case management and financial aid for underinsured patients with serious illnesses including cancer
Pan-Cancer / Multi-Disease
- Pediatric Brain Tumor Foundation (opens in a new tab)
Patient organization specifically for pediatric brain tumors including DIPG, medulloblastoma, and other CNS tumors in children; funds research and supports families.
Pediatric Brain Tumor
- Pediatric Cancer Research Foundation (PCRF) (opens in a new tab)
Supports laboratory research focused on improving outcomes for children with cancer through novel therapies
Pediatric Cancer
- Prevent Cancer Foundation (opens in a new tab)
Dedicated to cancer prevention and early detection through education advocacy and research
Pan-Cancer / Multi-Disease
- Prostate Cancer Foundation (PCF) (opens in a new tab)
World's leading philanthropic prostate cancer research organization accelerating therapeutic development
Prostate Cancer
- Sarcoma Foundation of America (SFA) (opens in a new tab)
Funds sarcoma research and provides patient education and support resources for bone and soft tissue sarcomas
Sarcoma
- SHARE Cancer Support (opens in a new tab)
Provides community and support services to women with breast and ovarian cancer via helpline and support groups
Breast Cancer, Ovarian Cancer
- St. Baldrick's Foundation (opens in a new tab)
Largest private funder of childhood cancer research grants funding critical clinical and translational studies
Pediatric Cancer
- Susan G. Komen (opens in a new tab)
Largest breast cancer organization in the US; funds research, provides patient navigation, advocates for policy, and operates the Komen Breast Care Helpline; serves all breast cancer patients including metastatic disease.
Breast Cancer
- T-Cell Leukemia Lymphoma Foundation (TCLLF) (opens in a new tab)
Patient organization dedicated to T-cell lymphomas and leukemias including PTCL, CTCL, ALCL, and ATLL; supports research, education, and advocacy for this rare lymphoma subset.
T-Cell Lymphoma / Leukemia
- Testicular Cancer Foundation (opens in a new tab)
Patient organization for young men with testicular cancer; provides survivor support, awareness, and resources during and after treatment.
Testicular Cancer
- ThyCa: Thyroid Cancer Survivors' Association (opens in a new tab)
Provides free patient support thyroid cancer education and research funding for thyroid cancer community
Thyroid Cancer
- Us TOO International (now ZERO Connect) (opens in a new tab)
Prostate cancer support and education organization; merged operations with ZERO Prostate Cancer in 2018 (now ZERO Connect peer support program).
Prostate Cancer
- VHL Alliance (opens in a new tab)
Patient organization for von Hippel-Lindau disease, a hereditary cancer predisposition syndrome causing kidney cancer, hemangioblastomas, pancreatic NETs, and pheochromocytomas.
VHL Syndrome (Hereditary Cancer)
- Young Survival Coalition (YSC) (opens in a new tab)
Addresses specific needs of young adults diagnosed with breast cancer through peer support and advocacy
Breast Cancer
- ZERO - The End of Prostate Cancer (opens in a new tab)
Largest national prostate cancer advocacy and support organization focused on research funding and patient access
Prostate Cancer
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